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Withdrawal of treatment and the burden of interventions

Withdrawal of treatment and the burden of interventions

Background

We acted for the trust in the tragic case of King’s College Hospital NHS Foundation Trust v X & Anor [2023] EWCOP 34 , which concerned a young man (‘X’) who suffered catastrophic brain injuries and spinal damage following a car accident. These injuries resulted in him being in a persistent vegetative state with no function above or below the brainstem, and no prospect of recovery. After careful consideration, the trust applied to the Court of Protection for permission to withdraw life sustaining treatment. The Official Solicitor, acting on X’s behalf, was supportive of the Trust’s application, whilst X’s father and members of his family were not.

Theis J acknowledged that the Trust had undertaken extensive investigations and that the medical evidence, very sadly, all pointed in one direction. She concluded: ’I agree with the final analysis of the Official Solicitor that in the light of the evidence regarding the X’s medical condition, his lack of awareness and factoring in the likely wishes he would have to be with his family, the strong presumption of sustaining life and the limited evidence of pain, there is, in my judgment, overall no benefit to X in continuing the treatment, due to his lack of awareness and the bleak medical prognosis. In those circumstances, his best interests are met by the withdrawal of treatment’ (para 52).

Legal Analysis

When weighing best interests, one of many factors Theis J took into account was whether medical treatment can cause physical harm to a patient, even if they have no conscious awareness and no capacity to feel pain. This issue was addressed extensively in another case in which we acted on behalf of the applicant Trust: K (A Child) [2021] EWHC 5 (Fam) (‘Re K’) .

Theis J referred to Poole J’s welfare analysis in Re K which was approved by the Court of Appeal. Poole J said that treatment in PICU constituted a burden to K, notwithstanding her lack of conscious awareness, and the absence of pain is not the same as the absence of harm. He said: ‘The fact that a person has no conscious awareness does not give their clinicians, or anyone else, licence to perform procedures on them irrespective of their benefit’ (para 76), which Theis J quotes in her judgment (para 10).

In X’s case, Theis J considered that whilst there was no direct evidence of him experiencing pain, there were ‘intrinsic burdens to being cared for on ICU and the interventions necessary in such care’ (para 51). This case serves as a useful reminder of the need to consider the impact of such burdens in best interests decision making within the ICU context and beyond.

For further information and support on Mental Capacity, DoLS or Court of Protection issues, please get in touch

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Hill Dickinson LLP are the national leading experts on the Mental Capacity Act 2005 (MCA) and deprivation of liberty (DoLS), with more lawyers independently ranked in directories as leading practitioners in this field than any other firm.

Our lawyers have been involved in the leading case law, including at Court of Appeal and in the Supreme Court, as well as being involved in the development of national policy, guidance and training.   

You will be aware of the announcement on 5 April 2023 by the Department of Health and Social Care that the implementation of the Liberty Protection Safeguards (LPS) will not go ahead this side of a general election (anticipated to be in Autumn 2024).

This leaves us with all the challenges with the current system that LPS was supposed to address, in particular:

  • Dealing with those outside the scope of DoLS – people deprived of their liberty in the community or under the age of 18.
  • Even where DoLS applies – over the age of 18 and only in care homes and hospitals – the gulf between the demand on the system and its resources, leaving a huge backlog and a delay in authorisations.
  • Hospital cases, in particular, are not typically prioritised by local authorities, and there is also real uncertainty in how to apply the law on deprivation of liberty in a medical treatment context.  

To view our video resources relating to MCA/DoLS click here